WP2 Deliverable D2.4: Manual describing data held in the Central Results Repository
Authors: Maria Loane, Joanne Given, Joachim Tan, Abigail Reid, Joan Morris
Contributing participants and partners (in Beneficiary numerical order): Joan Morris, Joachim Tan, Abigail Reid, Gillian Briggs, Elizabeth Limb, Hannah Evans, Joanna Brigden (SGUL), Miriam Gatt (Malta), Kari Klungsøyr (Norway), Maria Loane, Joanne Given, Natalie Divin, Katy Karnell, Jailos Lubinda, Leke Aminkeng, Joanne Watt (UU), Ester Garne, Stine Kjær Urhøj, Abdulfatah Adam, Mads Damkjaer (RSD), Svetlana Glinianaia, Judith Rankin (UNEW), Amanda Neville, Gianni Astolfi, Aurora Puccini, Annarita Armaroli (UNIFE), Ingeborg Barišic, Ljubica Odak (KDB), Anna Pierini, Alessio Coi, Michele Santoro (CNR-IFC), Hermien de Walle, Renée Lutke, Nicole Siemensma Mühlenberg (UMCG), David Tucker, Daniel Thayer, Ieuan Scanlon, Ting Wang, Sue Jordan (PHW NHS, SU), Babak Khoshnood, Nathalie Lelong, Nathalie Bertille (INSERM), Clara Cavero Carbonell, Sandra Moreno Marro, Laia Barrachina Bonet (FISABIO), Mika Gissler, Anna Heino, Sonja Kiuru-Kuhlefelt, Tuuli Puroharju (THL), Wladimir Wertelecki, Lyubov Yevtushok, Lyubov Ostapchuk, Diana Akhmedzhanova (OMNI NET), Anke Rissmann, Dorit Goetz (OVGU), Vera Nelen, Guy Thys, Carmen Franken, Elly Den Hond (PIH), Olatz Mokoroa Carollo (BIOEF), James Densem (BIOMED)
Lay Summary:
This Deliverable 2.4 Report documents the EUROlinkCAT aggregate data that are held in the Central Results Repository at Ulster University. It describes the linkage methods, linkage success and linkage quality performed by registries contributing to the EUROlinkCAT WP3 (Survival), WP4 (Morbidity), and WP6 (Accuracy of coding in hospital databases and Termination of Pregnancy (TOPFA)) studies. It also describes the linkage methods for the WP5 (Education) studies.
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